Oct. 27, 2025
Stories in Our Steps: Walk to End Alzheimer's Recap
The Promenade at Piedmont Park turned into a surge of color, courage, and hope at the Walk to End Alzheimer’s hosted by the Atlanta chapter of the Alzheimer's Association—and we brought our cameras and team to capture it all. From the first cheers to the last hug, we connected with caregivers, researchers, and supporters who refuse to let this disease define our futures. As a media sponsor, Parenting Up! dug into practical takeaways and lifted the voices that make this movement real.
We spoke with a variety of advocates - caregivers and families honoring parents and partners, and supporters who showed up with empathy even without a personal connection. We spoke with Dr. Levey of Emory’s research team who laid out why deep sleep, daily movement, and social connection can reduce risk, how accurate blood tests are transforming early detection, and why new medications that slow progression mark a true turning point. We also talk candidly about clinical trials—why enrollment lags far behind cancer, what’s at stake for prevention studies, and how a strong trial culture can accelerate breakthroughs for everyone.
Throughout the day, small moments carry big meaning: the flower garden of colors, a little girl holding the white flower that symbolizes the first survivor, and the reminder that empowerment programs help people live well with ability, not just diagnosis. The crowd’s energy makes one thing clear—joy is a strategy, and community is a form of care. If you’re a caregiver, a person living with dementia, or an ally ready to do something that matters, this conversation brings both hope and marching orders.
Walk with us, learn with us, and help move the science forward—subscribe, share this episode with someone who needs it, and consider joining a clinical trial or local chapter event. Your step might be the one that brings the white flower into bloom.
Visit Alz.org for more information and check us out at parentingup.com.
Executive Producer/Host: J Smiles
Producer: Mia Hall
Videographer/Editor: Annelise Udoye
"Alzheimer's is heavy but we ain't gotta be!"
IG: https://www.instagram.com/parentingup
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Patreon: https://patreon.com/jsmilesstudios
TEXT 'PODCAST" to +1 404 737 1449 - to give J topic ideas, feedback, say hi!
Be sure to leave us a review!
00:00 - At The Walk To End Alzheimer’s
00:51 - Humor And Heart For Caregivers
02:14 - Why Prevention Starts With Sleep
06:29 - Media Sponsor Moments And Crowd Energy
06:56 - Onstage: Progress, Hope, And Prevention
08:11 - Sleep Research And Lifestyle Habits
09:16 - Why Clinical Trials Matter
10:31 - Early Detection And New Medicines
11:33 - Empowerment Programs For Living Well
14:07 - Caregiver Voices And A Memoir
17:15 - Flowers Of Remembrance And Hope
20:16 - A Field Of Services And Support
22:16 - The White Flower And First Survivor
24:19 - Joy, Diversity, And Collective Strength
28:13 - Call For Community And Action
31:16 - Tears, Resilience, And Closing Thanks
WEBVTT
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I am standing in Piedmont Park at the world's largest Alzheimer's event.
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Why is it the largest?
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It's because the walk to end Alzheimer's happens all over the country at the same time, more or less, right?
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Today, we are actually a media sponsor.
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Jay Smiles is out there raising awareness.
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She reaches a community of caregivers that we may not be able to reach on our own.
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So the more awareness we can raise, the better.
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On top of that, you know, caregiving and Alzheimer's and dementia can be so heavy.
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And she really shows people that like you can you can laugh.
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You can still live, you can still laugh, and you can still enjoy life as much as you can, and that's just so important.
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It's such an important part of caregiving.
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So one of the things that's most important, we think, is that it's estimated about 40-45% of Alzheimer's disease must be preventable.
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And the way we can prevent it is by having people do things that are going to promote healthy behaviors.
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Sleep is one of the most important things.
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Getting a good night's sleep, slow-weight sleep, enhances our memory, and clears out those toxic amyloid flaps and neurofibrillar candles in our brain.
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So sleep is really critical.
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Parenting up caregiving adventures with comedian Jay Smiles is the intense journey of unexpectedly being fully responsible for my mama.
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For over a decade, I've been chipping away at the unknown, advocating for her, and pushing Alzheimer's awareness on anyone and anything with a heartbeat.
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That's why I died, don't die.
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Don't be ready for the joke.
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Caregiver newbies, OGs, and village members just willing to prop up a caregiver.
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You are in the right place.
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Hi, this is ready.
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I hope you enjoy my daughter's podcast.
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Is that okay?
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Today's supporter shout out is two people.
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Libby and Leslie of Alzheimer's Association of the Rockin' Georgia chapter.
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Jay Smiles is out there raising awareness.
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She reaches a community of caregivers that we may not be able to reach on our own.
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So the more awareness we can raise, the better.
00:02:40.800 --> 00:02:47.520
On top of that, you know, caregiving and Alzheimer's and dementia can be so heavy.
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And she really shows people that like you can you can laugh.
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You can still live, you can still laugh, and you can still enjoy life as much as you can, and that's just so important.
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It's such an important part of caregiving.
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So it's just really cool that she is in this middle where she gets it and she is raising awareness and she's just showing caregivers like it's okay and you're not alone.
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She's amazing.
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First of all, her spirit and her energy, of course, is amazing.
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Um, she did one of our pre-interviews, which is a big um benefit to our sponsors who get to have some airtime.
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And um one of the pre-interviews that we did with our research tent in with Emory University, and that was so impactful.
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Um, the entire crowd had stopped to hear what what they were saying, and it was just really, really great.
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Not to mention she's you know jumping in around and interacting with the crowd all day.
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It was amazing.
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We're really thankful to have her.
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Now you know you want to get a support shout out too.
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I know you do, I know you do, and you should know what to do.
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Leave a review on Apple Podcasts, YouTube, or Instagram.
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We are at parenting up everywhere.
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What's up, family?
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It's your girl Jay Smile, and I am standing in PowerPark at the world's largest Alzheimer's event.
00:04:16.879 --> 00:04:17.920
Why is it the largest?
00:04:18.079 --> 00:04:27.759
It's because the walk-to-in Alzheimer's happened all over the country at the same time, more or less, right?
00:04:28.079 --> 00:04:31.040
Today, we are actually a media sponsor.
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Community.
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We got a kid and all kinds of fancy stuff.
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We got giveaways.
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So many people trying to fight and beat this disease.
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We met people living with what they call young Alzheimer's.
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We met people who have family members that die from Alzheimer's on both sides.
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Can you imagine that?
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Anyway, we're out here.
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Today is about joy, awareness, and advocacy.
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The joy is that we have a community that is willing to fight this thing.
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Yes.
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Good morning.
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Good morning, like we're gonna take a few minutes to bring information of the biggest person here.
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Thank you, Ben.
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Thank you.
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Good morning, all cyber spider team.
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The weather is on our side, and right now that makes me feel good.
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I'm very smiling of the parenting of the podcast.
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We are one of the media sponsors.
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My mother was the most early sponsors about 14 years ago.
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I'm a very caregiver, and because of it, I started a podcast to support family caregivers.
00:06:02.720 --> 00:06:05.519
So what we say is humor.
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We lead with benefits, and no matter what, until there's a cure, we can lock arms and support each other across the globe.
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So one time for the all-size association.
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Now we want to hear some real data and science and stuff.
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Dr.
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is with every stuff about you know legends and things and dad.
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How are you?
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I am great, and I'm so happy to be here.
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Thank you, Jay.
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This is fabulous.
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What a great turnout.
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Um, you want to hear about ending Alzheimer's disease?
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Who's gonna walk today to end this disease?
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That's our goal.
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We certainly have a lot of caregiving to do and caregiving research to do, um, but we're on the walk on the walk to end Alzheimer's disease, and we have been making so much progress over the last two years.
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We have come hundreds of miles getting closer.
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Some of the research that's ongoing now is actually testing things that might be able to prevent Alzheimer's disease.
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And we'll know in the next year or two whether some of the things that we're now treating patients with are actually going to be effective for preventing the disease.
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So we're getting there.
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I love that so much.
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Can you give us a little information with some of the research that's excited about there's there's a lot that I'm excited about.
00:07:49.199 --> 00:07:54.800
Um, right here behind me, we have our sleep research team and who's out here.
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So one of the things that's most important, we think, is that it's estimated about 40-45% of Alzheimer's might be preventable.
00:08:04.800 --> 00:08:10.319
And the way we can prevent it is by having people do things that are going to promote healthy behavior.
00:08:10.879 --> 00:08:13.439
Sleep is one of the most important things.
00:08:13.680 --> 00:08:25.600
Getting a good night's sleep, low-weight sleep, enhances our memory, and clears out those toxic amyloid plaques and neurofibrillary cannabis in our brain.
00:08:25.839 --> 00:08:28.079
So sleep is really critical.
00:08:28.319 --> 00:08:30.160
How do you get good sleep?
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You do things to promote good sleep, like exercise, have a good diet, have good social interactions during the day.
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And so those are the types of healthy lifestyles that are gonna end Alzheimer's disease for many, many people.
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Oh my goodness, as a family caregiver, I'm urged in sleep losing if I try to walk out the house.
00:09:04.720 --> 00:09:06.559
Okay, all right, we would have a lot of people.
00:09:06.639 --> 00:09:10.480
But thank you for giving me our marketing orders.
00:09:11.440 --> 00:09:19.679
Now, we know there's a lot of research and trials medication might work.
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Can you explain to us why those trials really are important?
00:09:26.879 --> 00:09:28.879
Um, thank you for bringing that up.
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We have so many ideas because of the advances of the research, how medications can be more effective.
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The biggest problem is getting people to volunteer to test medications to prevent the disease, to slow the disease.
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And so clinical trials and research is absolutely critical.
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If you look at the progress that's happened in fighting cancer, which we know has been spectacular, there are ten times the number of clinical trials and the culture is that people with cancer get into a clinical trial.
00:10:04.799 --> 00:10:12.879
We need to make that happen for Alzheimer's disease and related to methods because we can go faster on our you know race for a cure.
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Thank you.
00:10:31.200 --> 00:10:33.519
One is early detection.
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Our ability to help rest on identifying people in early stages, not waiting for them to go through a difficult journey of years and stress trying to find a diagnosis.
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We now have a blood test, which is very accurate.
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So what a transformation because we can think about screening people and finding the disease as early as it starts.
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Second thing is we can do something with new medications.
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Over the last couple years, we've had our first medicines that can slow down the progress of the disease.
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That is huge.
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That is the first step on our factor appearance.
00:11:11.120 --> 00:11:13.519
Did you all hear blood tests?
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I would like a round of applause for whoever made it that simple.
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I could probably almost test my knew it, but I probably could.
00:11:25.759 --> 00:11:35.919
Now, lastly, what can you give us as caregivers and those who've been diagnosed?
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That could be a thing today.
00:11:39.200 --> 00:11:40.399
Some of the big model.
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We have this phenomenal program called the Cognitive Empowerment Program, and it helps educate people about the lifestyle changes they can make to embrace other abilities.
00:11:58.240 --> 00:12:02.879
Having a disease like Alzheimer's disease doesn't mean you're robbed of all abilities.
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It's about how do we empower people, take advantage of the gifts that we have, the social interactions, our families, our friends, and keep ourselves as healthy as possible and enjoy the best quality of life.
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So there are things we can do.
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We need to get people engaged, diagnosed, and get them the services they need.
00:12:22.879 --> 00:12:23.679
That's it.
00:12:23.919 --> 00:12:26.480
You heard from the best of the best.
00:12:26.879 --> 00:12:29.679
Let's give a round of applause for Dr.
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Lee, for Aerie, for the all kinds of associations.
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Together, we can beat this.
00:12:42.000 --> 00:12:42.639
You're welcome.
00:12:46.879 --> 00:12:47.039
Thank you.
00:12:47.759 --> 00:12:49.759
One of the things that we need to do.
00:13:05.679 --> 00:13:08.639
I am the PRC.
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Don't have me to see my hurt.
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She's got great work.
00:13:15.360 --> 00:13:18.879
I'm not doing this morning and all this for people living in the future.
00:13:19.360 --> 00:13:21.440
You know, just trying to do some good in the world.
00:13:21.600 --> 00:13:22.799
You've been doing good, baby.
00:13:22.879 --> 00:13:24.720
Look, she is playing herself now.
00:13:24.879 --> 00:13:28.480
She does so much research for us and our community.
00:13:28.799 --> 00:13:29.679
So I got this all the time.
00:13:29.759 --> 00:13:32.159
That's why we got so much.
00:13:32.480 --> 00:13:33.279
She's at Emery.
00:13:33.440 --> 00:13:35.279
She's a PhD, okay?
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I'm not.
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I'm a bullshit talker, but I'm good at it.
00:13:40.639 --> 00:13:43.200
We need the real mix with the research, right?
00:13:43.440 --> 00:13:44.639
Absolutely, sweetheart.
00:13:48.720 --> 00:13:50.000
Wait, better now.
00:13:50.240 --> 00:13:51.279
Are you kidding me?
00:13:51.519 --> 00:13:52.159
I know, right?
00:13:52.320 --> 00:13:53.200
Wait, is that still on?
00:13:53.840 --> 00:13:54.480
Is that still on?
00:13:54.960 --> 00:13:55.919
Yeah, hey.
00:13:56.399 --> 00:13:58.000
This is the guy.
00:13:58.320 --> 00:14:00.320
He's been on the podcast already.
00:14:00.639 --> 00:14:02.639
Dan, look, it rhyme with turkey.
00:14:02.720 --> 00:14:06.080
I know you it's G-O-E-R-K-E.
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It's a mess.
00:14:07.759 --> 00:14:08.639
Tell the name of your book.
00:14:08.799 --> 00:14:09.440
You're beautiful.
00:14:09.840 --> 00:14:11.679
Unforgettable, unbelievable.
00:14:11.759 --> 00:14:18.480
I wrote a memoir of my caretaking journey with my wife, Denise, who was diagnosed when she was just 56.
00:14:19.200 --> 00:14:21.120
Anyway, it's out there.
00:14:21.360 --> 00:14:21.919
Buy it.
00:14:22.080 --> 00:14:23.279
It's on Amazon.
00:14:23.519 --> 00:14:27.200
This lady is wonderful, an amazing lady.
00:14:27.519 --> 00:14:28.559
Thank you for what you do.
00:14:29.120 --> 00:14:29.679
Same here.
00:14:29.759 --> 00:14:35.440
And listen, this part is, it's, I'm gonna say it, and don't y'all judge.
00:14:35.759 --> 00:14:37.759
But let me tell you how badass he is.
00:14:38.000 --> 00:14:49.679
His wife has been an angel for years, and he is still trying to fight with us in this community to get um a cure.
00:14:49.919 --> 00:14:50.240
Yeah.
00:14:50.559 --> 00:14:53.200
So once a caregiver, always a caregiver, right, Dan?
00:14:53.519 --> 00:14:54.080
Absolutely.
00:14:54.480 --> 00:14:55.360
You are awesome.
00:14:55.919 --> 00:15:00.720
Dan was at the recording of my first comedy special.
00:15:00.960 --> 00:15:01.919
So we go together.
00:15:02.080 --> 00:15:03.759
We go together, go together.
00:15:04.720 --> 00:15:05.039
All right.
00:15:07.919 --> 00:15:15.039
In the dementia Alzheimer's community, yellow means you're a caregiver or a supporter of caregivers.
00:15:15.440 --> 00:15:16.480
So what up, though?
00:15:16.799 --> 00:15:18.240
All my yellow people.
00:15:18.720 --> 00:15:20.960
Thank you for being a yellow person.
00:15:22.159 --> 00:15:23.279
I'm Jay Smiles.
00:15:23.440 --> 00:15:24.960
I'm one of the media sponsors here.
00:15:25.039 --> 00:15:25.120
Okay.
00:15:25.440 --> 00:15:26.960
Have Parenting Up Podcast.
00:15:27.360 --> 00:15:28.159
Nice to meet you.
00:15:28.720 --> 00:15:29.759
Ann Chicago.
00:15:29.919 --> 00:15:30.240
Okay.
00:15:30.399 --> 00:15:32.000
Hey, how you doing?
00:15:33.360 --> 00:15:34.320
It's a pleasure.
00:15:34.399 --> 00:15:36.159
But I did see you out at the tent.
00:15:36.320 --> 00:15:36.559
Yep.
00:15:36.639 --> 00:15:36.879
Yep.
00:15:37.039 --> 00:15:37.200
Yep.
00:15:37.360 --> 00:15:38.240
How is awesome?
00:15:38.720 --> 00:15:40.480
Come on, my dad.
00:15:40.639 --> 00:15:43.600
But in the early stages of awesome and just before time.
00:15:43.919 --> 00:15:47.840
But she kinda, you know, has been like the forerun.
00:15:48.000 --> 00:15:48.159
Yeah.
00:15:48.639 --> 00:15:52.559
At the forefront of, hey, let's do this, let's donate, and let's come out and walk.
00:15:52.720 --> 00:15:56.159
And so I'm trying to piggyback on her when it comes to attending me.
00:15:56.799 --> 00:15:58.399
So I'm part of her team.
00:15:59.360 --> 00:16:00.799
We are supporting my room.
00:16:01.360 --> 00:16:03.759
We gotta have team Ali.
00:16:04.399 --> 00:16:06.399
I'll be on her team next year.
00:16:06.960 --> 00:16:07.519
Why not?
00:16:08.879 --> 00:16:09.120
That's right.
00:16:09.200 --> 00:16:10.080
I'm on her team right now.
00:16:10.159 --> 00:16:12.399
And parenting up, we can merge and do everything.
00:16:12.960 --> 00:16:13.919
Yeah, yeah, yeah, yeah.
00:16:14.240 --> 00:16:14.799
I love it.
00:16:14.879 --> 00:16:16.000
It's a pleasure to meet you all.
00:16:19.120 --> 00:16:19.360
Thank you.
00:16:20.159 --> 00:16:20.960
14 years.
00:16:21.360 --> 00:16:22.320
14 years.
00:16:22.559 --> 00:16:24.080
And she bless her heart.
00:16:24.159 --> 00:16:28.320
She's not talking much anymore, but she can still chew.
00:16:28.559 --> 00:16:29.919
She can walk-ish.
00:16:30.879 --> 00:16:33.279
And if I call her name, she looks around.
00:16:33.440 --> 00:16:34.240
And that's all.
00:16:35.440 --> 00:16:38.879
I just need if I say mama and she does like this, that's good enough.
00:16:39.200 --> 00:16:41.679
I'm like, she knows that's my voice.
00:16:43.679 --> 00:16:45.120
All right, good to see y'all again.
00:16:45.759 --> 00:16:46.399
Yeah, yeah, yeah.
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What's your name, honey?
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