WEBVTT
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This episode is all about the longest day and we are making sure that it will be a part of that movement of yours.
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The longest day for anyone who doesn't know, it is technically the summer solstice, which I don't know which scientists made that up, but it is the longest day of sunlight on the whole globe.
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But the Alzheimer's Association did say that it would be their biggest marketing fundraising day of the year, because we're going to shed light on this dark disease.
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You're going to be in a caregiver space some point in your life, whether you need it, whether you are it, you're going to be in that space.
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When you find yourself in that role, whatever the barriers are, whatever those feelings that you're feeling, just know that there is someone on the other end.
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Just know that there is that other helping hand.
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A lot of the times we think that there's not or we think that I won't be qualified or I won't.
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You know they don't want to hear my story.
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Yes, we do.
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I think that one of the things I would like to say is that people have to first own that they are caregivers.
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I think that that is one of the barriers.
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Parenting Up.
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Caregiving Adventures with comedian Jay Smiles is the intense journey of unexpectedly being fully responsible for my mama.
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For over a decade I've been chipping away at the unknown, advocating for her and pushing Alzheimer's awareness on anyone and anything with a heartbeat.
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Spoiler alert this shit is heavy.
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That's why I started doing comedy comedy.
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So be ready for the jokes.
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Caregiver newbies, ogs and village members just willing to prop up a caregiver.
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You are in the right place.
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Hi, this is zeddy.
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I hope you enjoy my daughter's podcast.
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Is that okay?
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Today's supporter shout out is Miss Jelana Hayes.
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She's with the Agreed Program.
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Yep, y'all know we still in Detroit and we about to do this thing.
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We about to keep doing this thing, she says.
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I really enjoy what I've seen so far on the podcast.
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Listening to the caregivers share their stories was very inspirational.
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Thank you for creating a platform where caregivers can get real information and know they're not alone.
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Exclamation point.
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You know what I'm saying we are not alone, you're not alone.
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I'm not alone, you are not alone.
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If you want to receive a supporter, shout out.
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Y'all know what to do.
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Leave a review.
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Apple Podcasts, on YouTube, on IG we are parenting up everywhere.
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Holler at your girl.
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We in Detroit.
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Detroit, this is our first tour and it's happening in Detroit.
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Okay, you just get ready, baby.
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You know how they do it up here.
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What up though, what up, though?
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And this is the day that we are bringing you that fire, that Detroit fire, woo.
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So, wherever you listening, wherever you watching, just get ready, baby.
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Sit down, drink something, sip on something, eat on something, but be safe.
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Today's episode who caregivers can call Real Life Resources?
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What's up?
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Parenting Up family?
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You see it?
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Yes, I am still in the Detroit city, baby.
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I like saying that what up though, what up though.
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This is our third and final episode in our Detroit tour around caregiving.
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Okay, right now, this is the thing, this is the one.
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So what we're talking about on this particular episode, we are going knee deep in three very specific areas, with organizations that are on the ground in Detroit making it happen for caregivers like right now, already they got resources for you.
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That means code, for you ain't got to spend no money.
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They already got some stuff and know how to do some stuff that you can lean on them.
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Okay, doesn't that sound good?
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Look at me blessing you for free.
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Come on now.
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Who's giving you that kind of stuff, this dead age people stealing stuff from you and taking your taxes, trying to take social security.
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Anyway, that's okay, I'm going too far.
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So welcome everybody.
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Now.
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They're going to tell you in a second more about they self, but I'm excited because I now know what some of these acronyms mean.
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So this is.
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I'm trying to.
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She wants me to be casual with her, but I can't.
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This is Dr McNeil.
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I call her Dr Detroit.
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I'm going to try to call her Dr C today, but I'm probably going to call her Dr Detroit.
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Okay, but the one and only she is here representing Wayne State.
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Specifically, the agreed program, y'all, it's a $5 million grant.
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I could spend an hour talking about how you get a $5 million grant, but I ain't going to do that, okay.
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And then we have Ashley with the Alzheimer's Association, detroit chapter.
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Right, I ain't lying, emma.
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Yes.
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I'm telling the truth.
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Oh, michigan chapter.
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See, I was lying.
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But ain't Detroit?
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All of Michigan?
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That's what Detroit thinks, but the rest of Michigan as well.
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And then Courtney D, triple A.
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Shout out to anybody who know what all the A's are in the right order.
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It's like playing a Scrabble board on the old school soul train.
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But where the A's go, where the A's at, what's up, courtney?
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What up, though, all right.
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So listen, caregivers are underappreciated.
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I'm a caregiver.
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I'm going to just tell you what we feel most of the time on our insides Family caregivers who are unpaid and untrained.
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Specifically, we feel unseen, unheard, unappreciated.
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But y'all and your organizations don't feel that way.
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Y'all love us, y'all appreciate us, y'all got stuff for us to help us.
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Please tell us about it.
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So I'll start with the Geriatric Workforce Enhancement Program, that's the GWEP in the state of Michigan.
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We were the only one in the state of Michigan funded for five million dollars to improve the care that geriatrics receive in the state of Michigan, and to do that, one of our elements is to empower our caregivers, so we actually have continuing education for them, we have training for them, we have resources like apps and programs, podcasts, programs, podcasts.
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We're actually taking programs to these senior apartment complexes and providing that right delivery right there where they live, to help them be more educated about falls or dementia, early detection, where resources are.
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So our particular grant covers the state of Michigan and we're compiling all of the caregiver and geriatric specific resources in one space so that we can then be able to enrich the training that we provide for our caregivers, our patients, our providers, everybody to be better equipped to care for our most valuable asset our geriatric population.
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I love the old people.
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As you said it in a really fancy, probably politically correct way, our most valuable asset are geriatric people.
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What I like to say is I love my grandmama and granddaddy more than I love my little bitty cousins.
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That's how I like to say it, you know what I mean Because my grandparents have been there for me.
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I don't know if these little bitty cousins going to act right.
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You know they cute now.
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Two, three, four, five is fun to play with them, but when they get older, are they going to do for me?
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My grandparents have already shown up and showed out, so I feel like it's my turn and my opportunity to care back for them.
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Something you just said, doc, that really caught my attention is apps.
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All right, so now, if y'all going to have apps and stuff, then that means that the current generation who only likes to deal in digital and technology, they don't have some help in caregiving, because it's a whole lot of people out there who are either having to come home from college, maybe not go to college, or do college part time because they're assisting as a part of the care village, and I think something like apps might make it easier for them to know how to help with the family or even just to feel a little more engaged.
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Yes, that is the goal.
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So this particular app is called the Remember my Elder or Remember Me app, and so what that app does?
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It uses AI to identify resources in your particular area.
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It also allows you to hold healthcare systems accountable.
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So one of the evidence-based programs is called the Age-Friendly Health System and every time a 65 and older person enters the healthcare system, they should get a certain type of care.
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And when we're looking at medications, mentation, mobility and what matters and all four of those M's should be addressed every time you go to see a provider.
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So the app will help you keep track of that and even if your provider doesn't ask you, you can tell them.
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Violent told that you can.
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Violent told them to say this is what's been going on with me and my mobility, or this is what's been going on with me and my mentation and I want to have a conversation.
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So she's a tracker to kind of help that conversation happen a little better.
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I need a tracker.
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Okay for my mama, maybe for me too.
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Hell for all I know.
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I know my mama hadn't gotten but one of them m's.
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We ain't got no four m's.
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I can tell you that right now we have definitely not gotten four m's.
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Thank you so much.
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All right, who want to go next and tell me what a little bit about what y'all got going on for resources in Detroit or in all of Michigan?
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There I go again.
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Y'all know how it is my bad Michigan.
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I can't go.
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Yeah, ok.
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So yeah, we have our programs team and what we do is we have education programs for anyone who wants to learn any information about Alzheimer's or dementia.
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We have things that goes over.
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Some of our topics go over dementia conversations and also like legal and 10 morning signs and understanding.
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So we have like about like 15 topics, I would say.
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And then also we have support groups.
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There are support groups all over Michigan.
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They can be virtual or in person, and then they also they're for caregivers or for people in early stage, or they're also some support groups for other types of dementia that we have.
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And I would also say that we have care consultations.
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So we work with master's level social workers.
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They're available for families for up to six weeks, for a family that may want a little more guidance on, like, what to do or how to set up the best possible position for their loved one.
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And then also we have social engagement activities and those social engagement activities include, like we have a partnership with the Detroit Orchestra.
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They come out once a month to play for the loved ones with Alzheimer's or dementia, and we also and they also do things like go to the Henry Ford Museum or the Detroit Zoo, just to really keep them active in the community.
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Detroit is always a party.
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I don't know if all the I mean I'm not calling nobody out but I don't know if I've heard of other chapters.
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You know, partying with their folks with dementia.
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But I think that's a great idea.
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I think everybody deserves a party.
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Actually, we should just all be partying more, right?
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It probably would just make a lot of stress feel like it's melting off our backs Now with these things.
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Ashley, is there a fee or a membership?
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Do you have to be a?
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Like?
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You got to sign up for the Alzheimer's Association?
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You got to pay $5?
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What does it take?
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No, all of our programs are free to the community.
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Hello, all you have to do is call us.
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Y'all hear that.
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We giving y'all this good.
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Good, it's how many things that are free and useful free and useful.
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Keep going, baby.
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Oh yeah.
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So yeah, they're free to the community.
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All you have to do is call our helpline, 1-800-272-3900.
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I have to memorize that at this point, I say it so many times.
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But yeah, you can just call the helpline and they can direct you anywhere you want.
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I know we also are doing like.
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One thing I also want to highlight is the DEI that we're doing In particular.
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We do Jewish outreach, Hispanic, Latino outreach, Me I do African-American outreach and then we also do MENA community outreach.
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So we're really trying to reach out to those vulnerable populations that may not get the information and resources.
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They know of them less.
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I would say yes, a huge moment, and say thank you to the Alzheimer's Association for standing 25,000 toes down in DEI.
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And it is amazing that you even share that and bring that up, because this episode is all about the longest day and we are Making sure that it will be a part of that movement of yours.
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The longest day for anyone who doesn't know, it is technically the summer solstice, which I don't know which scientists made that up, but it is the longest day of sunlight on the whole globe.
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But the Alzheimer's Association did say that it would be their biggest marketing fundraising day of the year, because we're going to shed light on this dark disease.
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See, I was listening to one of them webinars.
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And so I know that is something that people can rally around.
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And if you're looking for community as a caregiver within the Alzheimer's Association, that's a time and a place where everyone gets together.
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Whether you want to do a walk or you want to do crocheting or something, somebody is doing something fun and free.
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Fun and free.
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We love both of those.
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We love both of those.
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All right, courtney over there.
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Yes, I'm from the Detroit Area Agency on Aging.
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You're right, it's a whole lot of A's Detroit Area Agency on Aging You're right, it's a whole lot of A's, and we do a whole lot of work as well.
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Our caregiving team is we have a dynamic caregiving team, and one of the things that I find most important is that we are a listening ear.
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You can always give us a call.
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Our caregiving team is on staff, ready to receive.
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Whether you're in a crisis, whether you just need to talk to somebody, whether you need to figure out how you're going to navigate this new role, or you've been in it for a while and just don't know the resources available.
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Our team is there to help you figure that out.
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Some of the resources that DAAA can directly provide we allow you to choose what kind of respite care you want to or which way you want to go.
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Whether that's an adult day program, we have some overnight programs that are available to our caregivers, and we offer training and education in those areas as well.
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So you won't be alone when you go to the doctor.
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You'll have either one of our caregiver members or you'll have a script.
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You'll have all of the necessary information that you need to feel confident as a caregiver to go in and take care of your loved one.
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In addition to that, we provide so much reprieve.
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We have events.
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We just had hosted our caregiver pamper day Wait wait wait, wait, hold on now.
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I didn't get that invitation.
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I could have come up here a couple days early and pamper me it was beautiful.
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We had a beautiful comedian come in.
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We had a meditation moment.
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We had yoga there, beautiful dj, and we stepped, because detroit does step okay, that's true.
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Now, where them fans at, where them fans at.
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Okay, and we, had a blast doing that as caregivers and just taking our minds off of, uh, the role that it is.
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Um, some of our caregivers had to even bring their loved ones with them and guess what?
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We were right there.
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You don't have to worry about a thing.
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We got your mama, we got your auntie, we're fine, we're over here.
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You go do that, and so that's just one of the many ways that DAAA is supporting our caregivers out here.
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Okay, now listen, I'm sitting here and I'm listening to y'all and I feel like every caregiver at least in Michigan, okay should be fully fortified.
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But obviously at times people just might not be aware.
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They may not be aware as much work as you all are doing and as much effort as you have put in to supporting the community and each of your organizations have been around for.
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When I say a minute, I mean y'all didn't start last year, right?
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And for those who know about you, they sing your praises.
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But there are others who may be so new to caregiving or to this space and to this universe that they just don't even know where to start and how to find you like at all.
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So if you could go back just a tad to before you were fully entrenched in this space, what would you tell a person like that?
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What's the first thing to do?
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To feel welcome?
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Or to reach out to one of your organizations, like they, their family member, maybe just fail for the first time.
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Or they're thinking about maybe going to a primary care place to get a diagnosis, but they're too scared to go by themselves.
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But and they're like, yeah, I heard that girl, courtney, say they would go with me to the doctor, but my mama, but I don't even know if I want to take my mom to the doctor and I how the hell Courtney going to go with me?
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You know what I'm saying.
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People could have those types of hesitancies.
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What can you offer to help them?
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Let their guard down?
00:19:21.664 --> 00:19:22.867
Just to tell them that they're not the only ones.
00:19:22.867 --> 00:19:23.169
We are here.
00:19:23.169 --> 00:19:27.445
You're going to be in a caregiver space some point in your life, whether you need it, whether you are it, you're going to be in that space.
00:19:27.445 --> 00:19:38.980
When you find yourself in that role, whatever the barriers are, whatever those feelings that you're feeling, just know that there is someone on the other end.
00:19:38.980 --> 00:19:41.875
Just know that there is that other helping hand.
00:19:41.875 --> 00:19:47.577
A lot of the times we think that there's not, or we think that I won't be qualified or I won't.
00:19:47.577 --> 00:19:49.430
You know they don't want to hear my story.
00:19:49.430 --> 00:19:50.493
Yes, we do.
00:19:50.493 --> 00:19:52.126
We absolutely do.
00:19:52.126 --> 00:19:55.373
When you go to pick up that phone, we're going to be there.
00:19:55.373 --> 00:20:03.717
Google us, you know D-triple-A, d-a-a-a, and as soon as you do, we're going to pop up Soon as you call, we're going to answer the phone.
00:20:03.717 --> 00:20:08.909
Only thing I can tell you is just make that step, do it, don't be afraid.
00:20:08.989 --> 00:20:10.069
That's better than police.